THEMES

  Informed consent and assent
  Participant’s confidentiality and privacy
  Ethical practices around data handling/management
  Professional guidelines and codes of ethics which apply to the conduct of clinical research
  Definition of vulnerable populations and ethics of working with these populations
  Ethical issues related to biological samples
  Ethical issues related to genetic procedures
  Setting up an ethical review board or committee

 

 

 

ESSENTIAL RESOURCES

Introduction to informed consent The primary aims of informed consent are to protect the research participant from misinformation, exploitation and coercion. This course offers an introduction to the processes and wider factors which need to be taken into consideration when involving participants in clinical research. CLICK HERE
Essential elements of ethics Protocol authors should address certain ethical issues in the design of studies and document their rationale in a section of the protocol that will be easily understood by review boards and investigators. This online resource will assist clinical researchers as they write their study protocol and ethics committee members as they review and analyse clinical trial protocols. CLICK HERE
Research in global health emergencies: Ethical issues Emergencies are particularly challenging contexts in which to conduct health-related research – while research norms and standards remain important, applying these appropriately in exceptional circumstances needs careful and nuanced consideration. This course explores core ethical issues that arise during research in global health emergencies, and highlights how they sometimes go beyond those covered in traditional research frameworks. CLICK HERE
Children in clinical research If children and young people are not given the opportunity of taking part in research, it is very difficult to obtain the evidence needed to improve the health services provided for them. This course aims to give researchers and members of ethics committees confidence in thinking through the challenges of carrying out research with children and young people. CLICK HERE

 

 

 

LEARN MORE

Ethics in epidemics, emergencies and disasters: Research, surveillance and patient care A comprehensive exploration of the wide range of ethical issues faced by health professionals and policy makers working in the context of epidemics/pandemics and disaster situations, focusing primarily on the key areas of research, surveillance and patient care. CLICK HERE
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